So, have you ever heard of EB? Me either, until I stumbled upon this blog once upon a time. It was right before Ethan was born, and I was looking online, killing some time, surfing around the internet. I had NEVER heard of this disease before and it is really rare. Here is a small description of it.
Epidermolysis bullosa (EB) is a rare genetic disease characterized by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma. This condition is not contagious.
An estimated 1 out of every 50,000 live births are affected with some type of EB. The disorder occurs in every racial and ethnic group throughout the world and affects both sexes equally.
With all this said, little Jonah is about to turn 1 year old. In celebration of his birthday, they are having an auction here and all proceeds will go to DEBRA. A great cause! So, go and bid your heart out. I will be.
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